Here is a list with links to some of the best scientific literature and videos I have found on TSW.
It’s good to have some evidence when talking to doctors and it’s also a wise to know how to communicate in their language.
This may also be helpful to convince skeptical friends or family members, if you have any.
(Personally the only people I’ve had a hard time selling the idea that I’m suffering from TSW have been doctors and derms.)
ITSAN Overview on TSA/TSW/RSS
This was the video that made me realize what I was dealing with. Short video that pretty much gives you the broad strokes of this condition.
Current hypothesis in atopic dermatitis and red skin syndrome
This one is a little dry but does a great job of outlining the current hypothesis behind what causes rss and why. It’s made by a guy that has a Ph.D in immunology of allergies at McGill University. He also has a gofundme which could use some support.
Topical steroid addiction in atopic dermatitis
This paper is one of the most complete medical papers I have found on TSW/RSS. There are also a lot of great links in the reference section.
White Paper on Steroid Addiction by Dr. Marvin Rapaport
Dr. Rapaport has been one of, if not the, biggest dermatological proponents of RSS. He has a lot of great blog posts on his website relating to TSW/RSS.
Improvement of Atopic Dermatitis After Discontinuation of Topical Corticosteroid Treatment
This one is behind a pay wall but there is a brief overview of the study and a preview of the first few pages of paper.
DermNet New Zealand
A great resource for all things skin related. Here is their write up on TSW.
A prospective study of atopic dermatitis managed without topical corticosteroids for a 6-month period
This study included over 350 people and it showed that allowing atopic dermatitis to heal on it’s own over a six month period actually had better results than using TCS over the same amount of time.
Histological and Immunohistological Findings Using Anti-Cortisol Antibody in Atopic Dermatitis with Topical Steroid Addiction
This is also a great paper that has a lot of pictures of skin samples that highlight, pretty clearly, what a weakened skin barrier looks like.
Every doctor appointment ever
This video pretty much sums up every consult I’ve had with dermatologists over the 2 year period that I’ve been battling this condition. Maybe you can avoid this meeting by showing your doctor some of these resources.