Month 17 – May

This month was pretty hectic. My girlfriend and I moved into a new place so I’ve been very busy packing and unpacking. It was kind of tough because I would get kind of dusty from packing and go into itch fits, so the packing dragged over the last couple of months. Overall though my energy levels are pretty high, my sleep is fairly normal and I think my skin has been getting better. Still dealing with oozing on my face, neck and hands. My hands have been pretty up and down too; they seem to go through these cycles where the skin becomes very thin and then scabs over and is good for a few days before thinning again. There’s also some really painful cracks that form in the creases of my hands and knuckles that make life kind of dickish. I’m also going to see a rheumatologist tomorrow to see whether or not I have Lupus. I’m still not convinced that it’s Lupus but if we can rule that out then we’re another step in the right direction. Or maybe I just have Lupus, in which case, I should probably get a handle on that before my immune system attacks and kills me.

But I was looking up possible side effects of Betaderm, which is the topical steroid that I used and abused the most, and I have 24 out of 40 potential symptoms so I still think there’s a fairly high likelihood that I am healing from TSW.

Here’s the full list:

Betaderm Side Effects
increased skin sensitivity x
lack of healing of skin condition x
ongoing burning, itching and irritation of skin x
itchy rash with small, red, raised bumps x
skin discolouration x
skin infection x
“spider veins” or blood vessels visible through the skin
thinning of skin with easy bruising
acne or oily skin
blurring or loss of vision (occurs gradually if medication has been used near the eye) x
changes in skin colour x
depression x
eye pain (if medication has been used near the eye)
filling or rounding out of the face
increased blood pressure  ?
increased hair growth, especially on the face and body x
increased loss of hair, especially on the scalp x
irregular heartbeat
irregular menstrual periods  n/a
irritability x
loss of appetite x
muscle cramps, pain, or weakness x
nausea x
pus in the hair follicles x
rapid weight gain or loss x
reddish purple lines on arms, face, legs, trunk, or groin
redness and scaling around the mouth
softening of the skin x
stomach bloating, burning, cramping, or pain
swelling of feet or lower legs
tearing of the skin x
thinning of skin with easy bruising x
unusual bruising
unusual decrease in sexual desire or ability (in men) x
unusual tiredness or weakness x
weakness of the arms, legs, or trunk (severe)
white spots x
worsening of infections x

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