Here is a list with links to some of the best scientific literature and videos I have found on TSW.
It’s good to have some evidence when talking to doctors and it’s also a wise to know how to communicate in their language.
This may also be helpful to convince skeptical friends or family members, if you have any.
(Personally the only people I’ve had a hard time selling the idea that I’m suffering from TSW have been doctors and derms.)
This was the video that made me realize what I was dealing with. Short video that pretty much gives you the broad strokes of this condition.
This one is a little dry but does a great job of outlining the current hypothesis behind what causes rss and why. It’s made by a guy that has a Ph.D in immunology of allergies at McGill University. He also has a gofundme which could use some support.
This paper is one of the most complete medical papers I have found on TSW/RSS. There are also a lot of great links in the reference section.
Dr. Rapaport has been one of, if not the, biggest dermatological proponents of RSS. He has a lot of great blog posts on his website relating to TSW/RSS.
This one is behind a pay wall but there is a brief overview of the study and a preview of the first few pages of paper.
A great resource for all things skin related. Here is their write up on TSW.
This study included over 350 people and it showed that allowing atopic dermatitis to heal on it’s own over a six month period actually had better results than using TCS over the same amount of time.
This is also a great paper that has a lot of pictures of skin samples that highlight, pretty clearly, what a weakened skin barrier looks like.
This video pretty much sums up every consult I’ve had with dermatologists over the 2 year period that I’ve been battling this condition. Maybe you can avoid this meeting by showing your doctor some of these resources.